Last Sunday's escape from the hospital went so well, I'm going out again today.
I would never have guessed from how I felt last week that I'd be able to get out. Once my fever broke, I have felt stronger each day. I'm still not able to eat much. It is not so much nausea as food tasting bad because of the medications I'm on and the assault the chemo made on my whole digestive track. At home on Sunday, while watching the last show of the Soprano's season that Daniel had recorded for me, I ate two pieces of pizza without difficulty. My distaste for food may also be related to the repetition of hospital food and and the general smell in here.
I have a quarter inch of fuzzy grey hair now. It should fall out any day now as the result of the second chemo round. I'm getting used to being bald and can't remember what I looked like with hair without looking at a picture. I've put a picture of me having a really good "hair day" on my wall, to remind myself that it will be ok to have hair again.
Daniel got the Bette Crocker award for laundry yesterday. He came in last night with a big bag of folded clothes and declared that all the laundry was done and put away. How can two people produce so much laundry? And he completely prepared our apartment for the visit of our housecleaner. Why is it that we spend time preparing to have a place cleaned? Beanie had sent me this amazing "pop-up" card of a flower pot. It was a good way to present him with a well deserved Bette Crocker award.
I'm sitting in my black glider right now getting an antibiotic infusion. Daniel will pick me up downstairs and I'll have eight hours from the time they started this infusion before I have to be back here for the next one. hmmm I guess I'd better get dressed for my day out.
Express
- 11/22/2010 Transplant plus 4 yrs plus 77 days!We are home from what is Bonnie's third trip to Boston docz since Aug 31 (Transplant anniversary). This week we are celebrating our 22 anniversary. Both of us are busy on the book and with grandparenting. Bonnie's left eye continues to heal the "defects" that probably resulted in an attack of graft-vs-host disease this summer. Her Boston surgeon put a piece a placenta on the cornea and stitched it shut the first week of Sept and again in October. Most of the October stitches have come off, but Bonnie is keeping it well gooped and taped shut in an effort to give it a couple of other weeks of rest to secure the healing. Daniel is the sick one these days with terrible hip pain and now a very bad case of the crud. And still we are happy and doing well. We had a wonderful time with the kiddos at Halloween. Bonnie made Halloween coloring books from their own past Halloween pictures (at Crayola.com). They all came to hear Bonnie preach on the 21st; they are getting more and more accustomed to being in church and liking it more. We will be celebrating Thanksgiving at Jen's house with them and the other four grandparents. We loved seeing grandson Jackson and his mom, Dr. Deb in Boston. Jackson is quite the kindergartener and athlete these days. He's quite into playing chess. The book writing is squeezed in between doc and kiddo visits and church activities. We enjoy beautiful sunsets over the ocean every night.
Christmas 2009
- Welcome to Daniel and Bonnie's 2009 Christmas Album. Here are Bonnie's 140 photos. I'll be adding more from Ron and Jennifer sometime (soon I hope).
Jackson Visit
- Jackson spent a few hours with us today (January 21st).
Travels 'n Stuff
- Here are pictures of our friends, places we've been, remodeling projects we have done or are engaged in.
Cousins
- Some pictures from Zac and Luc's visit to Boston to see their cousin Jack
« Day Pass | Main | Failure is not an option. »
June 13, 2006
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Contact Bonnie and Daniel
- Bonnie Contactsjohnsonbca @yahoo.com same cell as always: 650-324-3816
- Daniel ContactsNOTE NEW EMAIL: daniel.shurman @gmail.com same phone: 650-248-9299
- NC mailing addressAddress until mid-June 2011: 4923 E Beach Dr. Oak Island, NC 28465
Recent Comments
- North Face Down on Bonnie's joy in her last days and her last hours. [Sixth draft]
- Daniel on Bonnie's son's wedding
- Melanie Jimmerson Bradford (from Baytown) on Bonnie's son's wedding
- betsy on Bonnie's son's wedding
- Mary Lou Wertz on 5 years ago last night ...
- Jim DeLaHunt on Eleven weeks without my Bonnie - Rebuilding my life.
- Beanie on Eleven weeks without my Bonnie - Rebuilding my life.
- betsy on Eleven weeks without my Bonnie - Rebuilding my life.
- Nuri Rossignol on Returning to Life - The new normal.
- betsy on Eulogy for Bonnie Johnson Shurman - John Sack - Vestry Member, President of Hi-Wire
Recent Posts
- Bonnie's son's wedding
- 5 years ago last night ...
- Apparently the only way out, is through - and the way through rests on the care of friends.
- Eleven weeks without my Bonnie - Rebuilding my life.
- I left heaven this morning...
- Father Terry Gleeson's Homily for Bonnie's Memorial Service in Palo Alto
- Eulogy for Bonnie Johnson Shurman - John Sack - Vestry Member, President of Hi-Wire
- Eulogy for Bonnie - David Liddle - US Venture Partners, ex-CEO of Interval Research
- Eulogy for Bonnie by Terry Winograd - Professor of Computer Science, Stanford University
- Open letter to Bonnie
September 2011
| Sun | Mon | Tue | Wed | Thu | Fri | Sat |
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| 1 | 2 | 3 | ||||
| 4 | 5 | 6 | 7 | 8 | 9 | 10 |
| 11 | 12 | 13 | 14 | 15 | 16 | 17 |
| 18 | 19 | 20 | 21 | 22 | 23 | 24 |
| 25 | 26 | 27 | 28 | 29 | 30 |
And what a day pass it was. It was just unbelievable and so wonderful to have Bonnie and Daniel with us this afternoon and early evening. I thank God everyday that I met you both and am so grateful for even the smallest times together, laughing, cooking, even the saying "farewell and see you soon".
Posted by: BK Hipsher | June 13, 2006 at 07:59 PM
Bonnie,
Sorry to be such a distant friend and sorry to hear about your troubles. Susan and are just completing a move to Portland to be with our older daughter Andee. We are helping her buy and fix up her first house.
Thinking of you...
Love,
Charlie
Posted by: Charlie Hoerner | July 18, 2006 at 06:47 PM